The European Young Persons’ Advisory Group Network (eYPAGnet) is all about getting young people involved in health research.
This helps researchers do better, more relevant research, and helps young people learn about science and health care.
We helped eYPAGnet to build their website and online Toolkit for professionals who want to set up and run groups of young people to shape future health research.
One of the (many) problems with research is that it doesn’t always focus on what matters to the patients. The best way to prevent this problem is to actively involve patients in the research process.
Active involvement means that research is done with, by and for patients, and not on them.
eYPAGnet is a Europe-wide network of groups of young people who want to get actively involved in shaping medical research.
The Toolkit contains tips, guidance and resources for the full spectrum of involvement activities, from diversity and inclusion to how to run a meeting.
So, in early 2020 we were commissioned by the European Young Persons’ Advisory Group Network (eYPAGnet) to create a free online toolkit for involving young people in research.
The project built on our work for Generation R, an alliance of YPAGs based in research hospitals around the UK. Working with French and Spanish colleagues, the group came together to pool their knowledge. They helped us design and build a resource for health professionals who want to involve young people in research.
eYPAGnet provides a single, centralised point of contact for:
The group also provides services to researchers who want to work with young people, including: